Friday, March 7, 2008

70K - Aged 15-39 Diagnosed with Cancer Yearly

I just found out about one of the coolest efforts on behalf of young people with cancer. Did you know there were 70,000 of us diagnosed every year? Did you know that while survival rates for most age-groups have improved dramatically over the past 30 years, for people 15-39, not so much. Not at all, even. Whether it's access to screenings or being taken seriously by doctors, this problem clearly needs some attention. If you support the rights of this group in dealing with their cancer diagnosis, please go here: and sign on as a supporter of this: (Watch the video too.)

Adolescent and Young Adults Cancer Bill of Rights.

We are neither pediatrics nor geriatrics,
we have unique needs - medically, socially, and economically.

However, the rights and dignity of adolescent and young adults are
equal and vital to all individuals.

We deserve to have our beliefs, privacy,
and personal values respected.

Access to care is a right,
not a privilege.

Our rights, as we perceive them to be and intend to preserve them, are:

  1. The right to be taken seriously when seeking medical attention to avoid late diagnosis or misdiagnosis, and entitlement to separate and confidential discussions regarding our own care.
  2. The right to affordable health insurance, as well as early detection tests unhindered by insurance or socioeconomic status.
  3. The right to be offered fertility preservation as well as current information and research regarding ongoing and potentially lifelong effects of cancer treatment that would affect our fertility.
  4. The right to be informed about available clinical trials and given reasonable access to them.
  5. The right to untethered access to adolescent and young adult cancer specialists and, when requested, a second opinion regardless of insurance or geographic location.
  6. The right to access a social worker or caseworker who is well-versed in adolescent and young adult cancer specifics.
  7. The right to “generationally applicable” psychosocial support.
  8. The right to have our insurance and position as a student or employee protected by law while dealing with our cancer in order to minimize discrimination.
  9. The right to clear explanations regarding the long-term side effects of our disease and its treatment, and to be offered all available and applicable physical reconstruction and rehabilitation options.
  10. The right to have all of our treatment options explained to us in full detail, to have our questions answered, and to receive clarification when requested so that we can be an active part of our own care.

Preserve our potential.

Hooray for Help spread the word!

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