Wednesday, May 27, 2009

Survivorship

Survivorship is a relatively new term in our collective vocabulary. It represents both a positive direction in medical advancements, and at the same time, a host of new long-term impacts from traditional cancer treatments as people are living longer with the disease. My friend Matt just published a great article about this on the Huffington Post.

Many people are confused about what to call themselves or others when they are diagnosed with cancer. If you just found out yesterday that you have the disease, are you a survivor today? I say absolutely YES, and many others agree with me. Surviving the diagnosis is nothing to sneeze at, and those initial days can truly be the most difficult part – emotionally, if not physically. Wrapping your head around the idea that your life is now changed forever is no small task. Staring your mortality in the face is scary.

Being a survivor and living strong are empowering. Wouldn’t you rather be called a survivor than a cancer patient or worse, victim? We can borrow some wisdom from other areas like sexual assault or other forms of abuse. Being a survivor rather than a victim is always preferable. The minute you receive the diagnosis, you are surviving cancer, and every day you keep on breathing after that, you will be a survivor. June 7 is National Cancer Survivors Day, and believe it or not, this day has been observed for 22 years now. I hadn’t heard of it until last week, which was, incidentally, my 3rd Cancerversary (May 23).

My friend Ethan Zohn was recently diagnosed with a rare form of Hodgkin's. You may recognize his name as the winner of Survivor Africa. His new status gives a whole new meaning to his moniker as a "survivor." I was always proud of Ethan for the way he played and won Survivor, and for what he did with the prize money - invested it in a non-profit he founded called Grassroots Soccer which utilizes soccer players to do AIDS/HIV education in Africa. I'm sure cancer hit Ethan especially hard since his father died of the disease when Ethan was only 14-years-old. As he has overcome other challenges in his life, I know he will do so with this one as well. Watch him talking about cancer on CBS's Early Show here.

National Cancer Survivor’s Day is an annual, worldwide Celebration of Life that is held in hundreds of communities throughout the United States, Canada, and other participating countries. Participants unite in a symbolic event to show the world that life after a cancer diagnosis can be a reality, according to the website.

I met a pediatric neurological oncologist at a 4th of July party days before I was scheduled to begin chemo in 2006. In addition to pumping him for information about my chemo drugs and what kind of side effects I could expect, I shared my awe that he could do his job day in and day out. “Working with kids who have brain cancer must be so hard,” I mused. “Actually,” he said, “it’s way better now than 20 years ago when I started – many of the kids actually live now.”

Wow! Medicine really has come a long way. Many of those kids are experiencing side effects later in life from the toxic chemicals used to treat their illness, but at least they are alive. Survivorship brings up a whole host of new issues for us to focus on, such as fertility issues for young adults, long-term side effects of treatment, emotional issues and financial ones too (all these new medical advancements cost ALOT of money). These are good problems to have because they mean that the “patient” is still alive to have them, but they need to be addressed nonetheless.

I am proud to be a survivor, and whatever issues I have to deal with pale when measured against more time with my family and friends, important work to do, writing something that might help someone else going through a challenge, and great adventures and travel to experience – the joys, and sorrows too, of life. And I can’t say enough about the wonderful people that I have met along the way on this cancer journey. It’s a club that no one wants to join, but an amazing community once you are part of it. Here’s to the survivors!

3 comments:

Jen said...

Hey! I found your blog through another site and wanted to introduce myself. My name is Jen Rachman, and I too am an Ovarian Cancer suvivor. I was diagnosed at age 26, and knock on wood been in remission nearly five years. I couldn't agree more w/ your writings, especially about how hard it is to deal w/ cancer at such a young age. I think your blog is great! I noticed you wrote about I'm Too YOung for This, and I too am a member - actually on the young adult leadership committee. Thanks for bloogging about your experience as it is so important! Be well - Jen (jenrachman@i2y.com)

Dennis Pyritz, RN said...

Open invitation to you and your readers to participate in the Being Cancer Book Club. This month we are discussing “The Last Lecture” by Randy Pausch. “...the lecture he gave ... was about the importance of overcoming obstacles, of enabling the dreams of others, of seizing every moment (because “time is all you have…and you may find one day that you have less than you think”). It was a summation of everything Randy had come to believe. It was about living.”
Monday is Book Club day; Tuesday Guest Blog and Friday Cancer News Roundup.
Also check out Cancer Blog Links containing almost 200 blog links and Cancer Resources with 230 referenced sites, both divided into disease categories.
Please accept this invitation to join our growing cancer blogging community at www.beingcancer.net
Take care, Dennis

Mike said...

Everyone with cancer should know about the latest data on vitamin D in cancer. Take a look at www.vitaminD3world.com for good summaries of the data. The site also offers a good newsletter and recently launched a micro pill formulation of vitamin D