Since my recurrence of ovarian cancer in mid-September, I have been doing a great deal of reading about what I could do to eradicate the cancer once and for all from my life. The studies on diet and exercise were not surprising, and I have radically changed my diet over the past three weeks. However, the importance of emotional well being and social support have been very enlightening. The title of this column is the same as a book by Dean Ornish about this very topic. He cites numerous studies about the key role played by family, friends, spouses and social connections such as church/synagogue or other community associations in fighting illness.
It turns out that being single can be a predictor of shorter survival times and an increased chance of recurrence. And the studies don’t just relate to cancer patients, in fact, Ornish’s work is primarily with heart disease, but the findings suggest that even the common cold can be better protected against with quality social networks and interaction. When we hear the term “social networks” today, we think of tools like Facebook and Twitter. Ornish wrote his book before these networks were available, but he does suggest that virtual relationships are not as meaningful as real face-to-face ones. Sometimes modern society can make us feel connected when we really aren’t.
The most striking study was conducted by Dr. David Spiegel and colleagues at Stanford in 1989. Published in the British journal The Lancet, they studied women with metastatic breast cancer. Spiegel initially set out to prove that social connection DID NOT have an impact on survival. Participants in the study were divided into two groups – both of which received the same conventional treatments such as chemotherapy, radiation and surgery. One group also met together for 90 minutes each week over the course of a year to talk about the impact of the disease on their lives. They became comfortable enough to share their feelings openly, including fears of disfigurement, abandonment and even death.
Five years later, Dr. Spiegel reviewed the data and was shocked to discover that women in the support group lived on average twice as long as the control group, and all of the women in the group without support were dead. Dr. Spiegel wrote the book Living Beyond Limits about the extraordinary findings of this study. Other studies have shown that support groups as short as six weeks long have had similar outcomes for the people who attended regularly. Each study controlled for diet, exercise, family history and other factors that typically impact disease and found significant advantages to social connection even beyond these other factors.
So, does that mean that those of us who are single are doomed to get sick more often and die sooner than our married or partnered friends? Absolutely not! In fact, marriages with problems – a great deal of disagreement or stress – have been shown to produce negative effects as well. As evidenced above, support can come in many forms: a close network of friends with whom you can share your fears, or even a support group of other people who understand what you are going through, a close family, strong ties to a religious or other community and a willingness to be vulnerable enough to truly open yourself up to others. That last factor is perhaps the most difficult for many of us, and yet, the most important to truly offer authentic connection. It isn’t the quantity of support that matters, but the quality!
Other factors that have been proven to influence healing and well being:
Roommates or living with family
Pets
Touch – massage, reiki or just holding the hand of a friend
Community involvement, service
Yoga and meditation (or other relaxation techniques)
If you are single and battling cancer or some other illness, connecting with the people in your life, or finding new sources of support, may be the most important thing you can do for yourself. Ask for what you need. Whether it’s talking on the phone more regularly, going out for a walk, sharing coffee once a week, visiting or hosting a friend or sibling for a weekend, joining a support group, participating in group meditation or yoga classes, serving others directly, or any number of other things you can do to connect with the world around you.
Experiencing this again has been incredibly difficult for me. Being told you have cancer the first time is shocking. You know your life has changed, and you are scared and uncertain about the future. Hearing you have cancer AGAIN, can be devastating. You know what to expect in some regards, how difficult it will be, and how much time it will take from your normal activities. It can feel like a betrayal of sorts. You have been there, done that, and thought it was in the past.
This recurrence has reinforced for me, how very important it is to provide a source of support for single people who are experiencing serious illness or injury. A new organization and support network, Solo Survivors, is in the works, though it may be a bit slower in gearing up given my own personal challenges at the moment. This dream started because I wanted to help others who were going it alone, but now I will get to figure out how to help myself in order to serve others. “We cannot hold a torch to light another’s path without brightening our own.,” as Ben Sweetland so aptly stated.
Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts
Thursday, October 28, 2010
Wednesday, February 4, 2009
World Cancer Day
Cancer is the leading cause of death around the world. Up to 84 million people will die of it between 2005 and 2015 without intervention, according to the World Health Organization, sponsors of World Cancer Day on February 4th. Their website states that more than 70% of the 7.6 million cancer deaths in 2005 occurred in low and middle income countries.
Reading these statistics once again made me feel grateful for the standard of care I received during my own cancer experience. I have often reflected on how fortunate I am not just to live in one of the wealthiest countries in the world, but in the city that the most people say they want to live according to a recent poll, and one that has top-notch medical treatment facilities. Even people who live in rural areas of this country have a more difficult time obtaining cutting-edge treatment.
As Americans, most of us rarely stop to reflect on just how good we have it. We don’t have to worry on a daily basis about clean water, a comfortable and spacious place to live, access to food, energy and health-care. I had the luxury during my cancer treatment, of access to reiki, retreats and programs targeted to cancer survivors, and, more recently, services for people in my specific age group. Many people in developing countries might be lucky to receive a diagnosis in time to do something about it.
Some incidents in the past few weeks have given me cause to ponder the many modern conveniences we take for granted in this country. They both make our lives easier, and also make us reliant upon them. The electricity in my condo went out for 45 minutes one night last week, and I realized how little of what I normally do was possible or convenient without it. I had just arrived home from a trip and was anxious to do laundry, make something to eat and watch a little television. Couldn’t do any of those things without electricity. It was nice to be forced to sit with a flashlight and a magazine and relax for a little while.
My experience, by any standard, was a very minor inconvenience. Just a few days later, my family experienced a much larger inconvenience, but one that even they describe as “having many silver linings,” even as they are still in the midst of it. The two-inches of ice that blanketed Kentucky and the surrounding region recently was lauded as the storm of the decade for that area the day before it hit, but I’m not sure anyone imagined just how bad it would get. Weighted down by ice, trees and power lines snapped under the pressure, and everything from roads to cell phone towers were coated with the cold, slippery substance.
Electricity was interrupted almost immediately, and for many, their main source of home heat as well. Over the ensuing days, phone service – including cell phones – would be impacted as well, and finally, even water pressure couldn’t be maintained without the electric pumps used to get the water out of the tanks and into the pipes. Even though one large tree is leaning against both of their homes, and part of one tree came through my parents’ bedroom ceiling one night as they were sleeping five feet away, my parents and sister’s family count themselves lucky. They huddled together around the fireplace at my parents’ house, and were able to cook meals on the gas stove. They had plenty of batteries to power radios and flashlights, and a neighbor who still had cell service so they could let everyone know they were doing ok. As my other sister and I kept each other up-to-date on the latest news, we marveled at how quickly the myriad communication methods we all rely upon daily can be cut off. It seems unthinkable in this day and age that we couldn’t communicate when normally there are so many ways for us to keep in touch.
Estimates are that it could take as much as a month to restore power to many, and trees still block the road-ways a week later in much of the area. My mom commented that far from being bored, it was taking most of their time just to survive. Cooking meals, chopping wood, boiling water – all tasks that might have been common in this country 50-100 years ago, depending upon where you live, or in many third-world countries even now. When I remarked to my sister that many people in the world live like this everyday, she replied, “At least they are used to it.”
Good point – and brings us back full-circle to the fact that we are both fortunate to have so many modern conveniences, and also completely reliant upon them. It is only when we find ourselves without them that we are able to fully appreciate how much modern technology brings to our lives, and how much it increases our life expectancy. Today, on World Cancer Day, I will be thinking about those who are not fortunate enough to have the standard of care that we take for granted. But in harmony with the mantra, “think globally, act locally,” I will be supporting organizations in my community that are doing their part to make the lives of cancer survivors easier. I hope you will too.
Reading these statistics once again made me feel grateful for the standard of care I received during my own cancer experience. I have often reflected on how fortunate I am not just to live in one of the wealthiest countries in the world, but in the city that the most people say they want to live according to a recent poll, and one that has top-notch medical treatment facilities. Even people who live in rural areas of this country have a more difficult time obtaining cutting-edge treatment.
As Americans, most of us rarely stop to reflect on just how good we have it. We don’t have to worry on a daily basis about clean water, a comfortable and spacious place to live, access to food, energy and health-care. I had the luxury during my cancer treatment, of access to reiki, retreats and programs targeted to cancer survivors, and, more recently, services for people in my specific age group. Many people in developing countries might be lucky to receive a diagnosis in time to do something about it.
Some incidents in the past few weeks have given me cause to ponder the many modern conveniences we take for granted in this country. They both make our lives easier, and also make us reliant upon them. The electricity in my condo went out for 45 minutes one night last week, and I realized how little of what I normally do was possible or convenient without it. I had just arrived home from a trip and was anxious to do laundry, make something to eat and watch a little television. Couldn’t do any of those things without electricity. It was nice to be forced to sit with a flashlight and a magazine and relax for a little while.
My experience, by any standard, was a very minor inconvenience. Just a few days later, my family experienced a much larger inconvenience, but one that even they describe as “having many silver linings,” even as they are still in the midst of it. The two-inches of ice that blanketed Kentucky and the surrounding region recently was lauded as the storm of the decade for that area the day before it hit, but I’m not sure anyone imagined just how bad it would get. Weighted down by ice, trees and power lines snapped under the pressure, and everything from roads to cell phone towers were coated with the cold, slippery substance.
Electricity was interrupted almost immediately, and for many, their main source of home heat as well. Over the ensuing days, phone service – including cell phones – would be impacted as well, and finally, even water pressure couldn’t be maintained without the electric pumps used to get the water out of the tanks and into the pipes. Even though one large tree is leaning against both of their homes, and part of one tree came through my parents’ bedroom ceiling one night as they were sleeping five feet away, my parents and sister’s family count themselves lucky. They huddled together around the fireplace at my parents’ house, and were able to cook meals on the gas stove. They had plenty of batteries to power radios and flashlights, and a neighbor who still had cell service so they could let everyone know they were doing ok. As my other sister and I kept each other up-to-date on the latest news, we marveled at how quickly the myriad communication methods we all rely upon daily can be cut off. It seems unthinkable in this day and age that we couldn’t communicate when normally there are so many ways for us to keep in touch.
Estimates are that it could take as much as a month to restore power to many, and trees still block the road-ways a week later in much of the area. My mom commented that far from being bored, it was taking most of their time just to survive. Cooking meals, chopping wood, boiling water – all tasks that might have been common in this country 50-100 years ago, depending upon where you live, or in many third-world countries even now. When I remarked to my sister that many people in the world live like this everyday, she replied, “At least they are used to it.”
Good point – and brings us back full-circle to the fact that we are both fortunate to have so many modern conveniences, and also completely reliant upon them. It is only when we find ourselves without them that we are able to fully appreciate how much modern technology brings to our lives, and how much it increases our life expectancy. Today, on World Cancer Day, I will be thinking about those who are not fortunate enough to have the standard of care that we take for granted. But in harmony with the mantra, “think globally, act locally,” I will be supporting organizations in my community that are doing their part to make the lives of cancer survivors easier. I hope you will too.
Labels:
cancer,
leading cause of death,
World Cancer Day
Sunday, March 16, 2008
You Are What You Eat
I ate dinner at Burger King tonight. I blame it on the crazy day I had – eating a late breakfast and working feverishly all day on too many projects, all of which seemed equal in priority, skipping lunch for an afternoon hair appointment which ran late, so that I was rushing back home to get my things for a meeting across town. It was only as I was sitting in traffic because of an accident that I realized how low on gas I was. I shifted the options back in forth in my mind: I can probably make it to the meeting and then get gas afterward. Followed by: I am already 20 minutes late because of the traffic, five more minutes won’t make that much of a difference, and I have an ironclad excuse. I got to the meeting 30 minutes late after stopping to put $5 in the tank – which barely moved the needle above E – only to find that the person I was meeting had also gotten stuck in the traffic and didn’t show for another 20 minutes. Meeting complete, it is now 7 p.m. and even though I had a pretty substantial breakfast for once, it had been ten hours ago.
I know that was a long story to justify my fast-food fix, and that what I described is familiar to many of you. The truth is, I feel the need to justify those now, whereas before I ate fast-food or delivery pizza 3-4 times a week without even thinking about it. Now, once a month seems like too much. As I was sitting there in the drive-thru looking at the menu, I realized why, with the triple-stacker staring me in the face – three beef patties, six strips of bacon, and three slices of cheese on a sesame seed bun – 800 calories, nearly 500 of them from fat. Suddenly, I understood why this country is having an obesity epidemic. These counts don’t even take into consideration the fries and drink! My double-cheeseburger kid’s meal – at 410 calories – paled in comparison to the other mega menu items. Since when did a triple anything become necessary?
As a cancer-survivor, I am more concerned about my diet than I was before, though I still wouldn’t consider myself a fanatic about it. I know other survivors who eat almost entirely vegetarian or even mostly raw vegetables now. I admire them. I don’t know how they do it – especially when traveling limits the options so much. Now that I work from home, it is easier for me to eat healthier with less planning ahead. I have never eaten a lot of junk food – potato chips, snack cakes or candy bars – though I do love an occasional hot fudge sundae or Little Debbie Swiss Cake Roll. But now I am eating much more broccoli, less meat, and I have even added kale to my diet. I didn’t even know what that was until a few months ago!
I did used to have a serious addiction to Coke. Mom wouldn’t let us drink it very often growing up (thank you Mom), and I rebelled in college by drinking about a six-pack a day. The zits and freshman 15 soon broke me of that habit, but it wasn’t until the past few years that I have been able to give it up almost entirely. (I did have one tonight as part of my kid’s meal, though milk and apple juice are now options too.) I mostly drink water now, rarely having anything else with meals – milk sometimes, and iced tea in restaurants.
The thing is, I believe that our overly-processed food is killing us. It is causing diabetes at staggering rates, obesity-related diseases through the roof, and yes, even cancer. I have been reading a lot about food lately, and we should all feel indebted to those authors who are exposing the problems with the corporate-driven, agri-business food supply and terrible eating habits in this country. Barbara Kingsolver, Michael Pollan and Kris Carr to name a few. Super Size Me and Fast Food Nation were also enlightening on the film front.
Ever wonder why there has been such a sharp spike in ADD and ADHD rates among children? Look no further than their sugar-laden diet. Who wouldn’t be hyperactive after eating sugared cereal and super-sweet juice for breakfast, drinking soda during the day, Twinkies in the lunch box, a mid-afternoon candy bar snack, and a huge bowl of ice cream after dinner? Sugary treats even masquarade as quick breakfasts on the go now in a variety of “bars” – cereal bars, breakfast bars and even granola bars pack in the high fructose corn syrup. In Super Size Me, Morgan Spurlock highlighted one Wisconsin school that eliminated all of its student behavior problems with one change. Instead of serving buy-in-bulk processed lunches, they bought locally produced food and made healthier meals from scratch. That’s it.
In his book, In Defense of Food, Michael Pollan notes that proportionally, Americans spend the same amount now as they did in 1960 on two major budget items – food and healthcare – only the percentage in each category has reversed. We now have access to cheaper and cheaper processed food-like substances, but we are spending much more on the diseases that this type of eating causes. As Pollan says, “Right now you have the food industry creating patients for the healthcare industry.” Doesn’t it make you kind of sick just thinking about how corporations are making large profits at the expense of our health? Pollan also suggests that if the government were paying for healthcare in this country, it would be far less likely to cave in to the food industry in making eating recommendations and setting policy.
We do have free will, and it’s time we exercised it by making better food choices. I have begun reading labels for the first-time ever. Pollan recommends we don’t eat anything with more than five ingredients or any ingredient we can’t pronounce. I also joined a CSA – these community-supported agriculture programs are popping up all over. Buy a “share” in the spring to support the seeds and labor of planting crops, possibly donate a little of your own sweat equity in weeding and watering, and reap the benefits of a big box of fresh produce every week through the summer and fall. Go in with friends though, as the shares yield large quantities of veggies.
It is very difficult, and often more expensive to eat healthily in today’s America. Choosing wisely from the menu is hard, and portion sizes are out of control. The large beverage of my youth is now smaller than the kid’s size at the movie theater. Many places don’t even have a small size anymore – it starts at “medium” or “regular” on the menu. Organically and locally grown produce is more expensive, and not everyone can afford to avoid processed and packaged food. Their price and convenience make them staples in lower socio-economic groups. However, farmer’s markets are growing in popularity, as are CSAs. Buying directly from the source has several benefits – you know where your food is coming from and can ask questions about how it was grown, you eliminate the middle-man, which can save money and also means your food wasn’t packaged and shipped for days to reach you, not to mention you are supporting the local economy and farmers with sustainable practices while creating a smaller carbon footprint at the same time. Win-win-win.
Finally, the slow food movement is catching on around the world. Started in Europe as a response to western fast-food creeping into their culture, slow food suggests that our eating should be based on quality, taste, environmental sustainability and social justice. It draws us back to a time when families sat down at the dinner table together to eat the same thing (and not individual meals nuked in the microwave). I have some friends who have hosted slow food events for groups of friends, and think it is a tradition worth continuing. If we truly are what we eat, we all need to be more intentional about what that is.
I know that was a long story to justify my fast-food fix, and that what I described is familiar to many of you. The truth is, I feel the need to justify those now, whereas before I ate fast-food or delivery pizza 3-4 times a week without even thinking about it. Now, once a month seems like too much. As I was sitting there in the drive-thru looking at the menu, I realized why, with the triple-stacker staring me in the face – three beef patties, six strips of bacon, and three slices of cheese on a sesame seed bun – 800 calories, nearly 500 of them from fat. Suddenly, I understood why this country is having an obesity epidemic. These counts don’t even take into consideration the fries and drink! My double-cheeseburger kid’s meal – at 410 calories – paled in comparison to the other mega menu items. Since when did a triple anything become necessary?
As a cancer-survivor, I am more concerned about my diet than I was before, though I still wouldn’t consider myself a fanatic about it. I know other survivors who eat almost entirely vegetarian or even mostly raw vegetables now. I admire them. I don’t know how they do it – especially when traveling limits the options so much. Now that I work from home, it is easier for me to eat healthier with less planning ahead. I have never eaten a lot of junk food – potato chips, snack cakes or candy bars – though I do love an occasional hot fudge sundae or Little Debbie Swiss Cake Roll. But now I am eating much more broccoli, less meat, and I have even added kale to my diet. I didn’t even know what that was until a few months ago!
I did used to have a serious addiction to Coke. Mom wouldn’t let us drink it very often growing up (thank you Mom), and I rebelled in college by drinking about a six-pack a day. The zits and freshman 15 soon broke me of that habit, but it wasn’t until the past few years that I have been able to give it up almost entirely. (I did have one tonight as part of my kid’s meal, though milk and apple juice are now options too.) I mostly drink water now, rarely having anything else with meals – milk sometimes, and iced tea in restaurants.
The thing is, I believe that our overly-processed food is killing us. It is causing diabetes at staggering rates, obesity-related diseases through the roof, and yes, even cancer. I have been reading a lot about food lately, and we should all feel indebted to those authors who are exposing the problems with the corporate-driven, agri-business food supply and terrible eating habits in this country. Barbara Kingsolver, Michael Pollan and Kris Carr to name a few. Super Size Me and Fast Food Nation were also enlightening on the film front.
Ever wonder why there has been such a sharp spike in ADD and ADHD rates among children? Look no further than their sugar-laden diet. Who wouldn’t be hyperactive after eating sugared cereal and super-sweet juice for breakfast, drinking soda during the day, Twinkies in the lunch box, a mid-afternoon candy bar snack, and a huge bowl of ice cream after dinner? Sugary treats even masquarade as quick breakfasts on the go now in a variety of “bars” – cereal bars, breakfast bars and even granola bars pack in the high fructose corn syrup. In Super Size Me, Morgan Spurlock highlighted one Wisconsin school that eliminated all of its student behavior problems with one change. Instead of serving buy-in-bulk processed lunches, they bought locally produced food and made healthier meals from scratch. That’s it.
In his book, In Defense of Food, Michael Pollan notes that proportionally, Americans spend the same amount now as they did in 1960 on two major budget items – food and healthcare – only the percentage in each category has reversed. We now have access to cheaper and cheaper processed food-like substances, but we are spending much more on the diseases that this type of eating causes. As Pollan says, “Right now you have the food industry creating patients for the healthcare industry.” Doesn’t it make you kind of sick just thinking about how corporations are making large profits at the expense of our health? Pollan also suggests that if the government were paying for healthcare in this country, it would be far less likely to cave in to the food industry in making eating recommendations and setting policy.
We do have free will, and it’s time we exercised it by making better food choices. I have begun reading labels for the first-time ever. Pollan recommends we don’t eat anything with more than five ingredients or any ingredient we can’t pronounce. I also joined a CSA – these community-supported agriculture programs are popping up all over. Buy a “share” in the spring to support the seeds and labor of planting crops, possibly donate a little of your own sweat equity in weeding and watering, and reap the benefits of a big box of fresh produce every week through the summer and fall. Go in with friends though, as the shares yield large quantities of veggies.
It is very difficult, and often more expensive to eat healthily in today’s America. Choosing wisely from the menu is hard, and portion sizes are out of control. The large beverage of my youth is now smaller than the kid’s size at the movie theater. Many places don’t even have a small size anymore – it starts at “medium” or “regular” on the menu. Organically and locally grown produce is more expensive, and not everyone can afford to avoid processed and packaged food. Their price and convenience make them staples in lower socio-economic groups. However, farmer’s markets are growing in popularity, as are CSAs. Buying directly from the source has several benefits – you know where your food is coming from and can ask questions about how it was grown, you eliminate the middle-man, which can save money and also means your food wasn’t packaged and shipped for days to reach you, not to mention you are supporting the local economy and farmers with sustainable practices while creating a smaller carbon footprint at the same time. Win-win-win.
Finally, the slow food movement is catching on around the world. Started in Europe as a response to western fast-food creeping into their culture, slow food suggests that our eating should be based on quality, taste, environmental sustainability and social justice. It draws us back to a time when families sat down at the dinner table together to eat the same thing (and not individual meals nuked in the microwave). I have some friends who have hosted slow food events for groups of friends, and think it is a tradition worth continuing. If we truly are what we eat, we all need to be more intentional about what that is.
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