Love and Survival

Since my recurrence of ovarian cancer in mid-September, I have been doing a great deal of reading about what I could do to eradicate the cancer once and for all from my life. The studies on diet and exercise were not surprising, and I have radically changed my diet over the past three weeks. However, the importance of emotional well being and social support have been very enlightening. The title of this column is the same as a book by Dean Ornish about this very topic. He cites numerous studies about the key role played by family, friends, spouses and social connections such as church/synagogue or other community associations in fighting illness.

It turns out that being single can be a predictor of shorter survival times and an increased chance of recurrence. And the studies don’t just relate to cancer patients, in fact, Ornish’s work is primarily with heart disease, but the findings suggest that even the common cold can be better protected against with quality social networks and interaction. When we hear the term “social networks” today, we think of tools like Facebook and Twitter. Ornish wrote his book before these networks were available, but he does suggest that virtual relationships are not as meaningful as real face-to-face ones. Sometimes modern society can make us feel connected when we really aren’t.

The most striking study was conducted by Dr. David Spiegel and colleagues at Stanford in 1989. Published in the British journal The Lancet, they studied women with metastatic breast cancer. Spiegel initially set out to prove that social connection DID NOT have an impact on survival. Participants in the study were divided into two groups – both of which received the same conventional treatments such as chemotherapy, radiation and surgery. One group also met together for 90 minutes each week over the course of a year to talk about the impact of the disease on their lives. They became comfortable enough to share their feelings openly, including fears of disfigurement, abandonment and even death.

Five years later, Dr. Spiegel reviewed the data and was shocked to discover that women in the support group lived on average twice as long as the control group, and all of the women in the group without support were dead. Dr. Spiegel wrote the book Living Beyond Limits about the extraordinary findings of this study. Other studies have shown that support groups as short as six weeks long have had similar outcomes for the people who attended regularly. Each study controlled for diet, exercise, family history and other factors that typically impact disease and found significant advantages to social connection even beyond these other factors.

So, does that mean that those of us who are single are doomed to get sick more often and die sooner than our married or partnered friends? Absolutely not! In fact, marriages with problems – a great deal of disagreement or stress – have been shown to produce negative effects as well. As evidenced above, support can come in many forms: a close network of friends with whom you can share your fears, or even a support group of other people who understand what you are going through, a close family, strong ties to a religious or other community and a willingness to be vulnerable enough to truly open yourself up to others. That last factor is perhaps the most difficult for many of us, and yet, the most important to truly offer authentic connection. It isn’t the quantity of support that matters, but the quality!

Other factors that have been proven to influence healing and well being:
Roommates or living with family
Pets
Touch – massage, reiki or just holding the hand of a friend
Community involvement, service
Yoga and meditation (or other relaxation techniques)

If you are single and battling cancer or some other illness, connecting with the people in your life, or finding new sources of support, may be the most important thing you can do for yourself. Ask for what you need. Whether it’s talking on the phone more regularly, going out for a walk, sharing coffee once a week, visiting or hosting a friend or sibling for a weekend, joining a support group, participating in group meditation or yoga classes, serving others directly, or any number of other things you can do to connect with the world around you.

Experiencing this again has been incredibly difficult for me. Being told you have cancer the first time is shocking. You know your life has changed, and you are scared and uncertain about the future. Hearing you have cancer AGAIN, can be devastating. You know what to expect in some regards, how difficult it will be, and how much time it will take from your normal activities. It can feel like a betrayal of sorts. You have been there, done that, and thought it was in the past.

This recurrence has reinforced for me, how very important it is to provide a source of support for single people who are experiencing serious illness or injury. A new organization and support network, Solo Survivors, is in the works, though it may be a bit slower in gearing up given my own personal challenges at the moment. This dream started because I wanted to help others who were going it alone, but now I will get to figure out how to help myself in order to serve others. “We cannot hold a torch to light another’s path without brightening our own.,” as Ben Sweetland so aptly stated.

Gratitude

It is so easy to get wrapped up in what is missing from our lives. The lack of boyfriend, fulfilling job or fat paycheck can loom large in our thoughts causing us frustration and disappointment. We tell ourselves that we need certain things to be happy, which only makes us “needy.”

Our thoughts then become a self-fulfilling prophecy, insuring that our focus on what’s lacking will create more of the same. We say things to ourselves that we would never allow others to say to us. These negative thoughts such as, “I will always be alone,” “I’m not good enough,” “I’m too fat,” contribute to a deep feeling of unworthiness that will keep us from getting what we want.

Oprah’s promotion, several years ago, of Sarah Ban Breathnach made gratitude journals all the rage for a while. Her books instructed us to write down five things a day we were grateful for. At the time, I had just broken my ankle in three places, couldn’t drive, walk or carry anything because of my crutches, and wasn’t feeling particularly grateful. But I started a gratitude journal anyway and was amazed at how easy it was to come up with five or more things a day to thank the universe for.

Focusing on and appreciating what we have is the best way I know to create more good things in our lives. Let’s face it - just by virtue of living in the United States or another first-world country, we have it better than most people in the world. Access to clean water, healthy food and medical care are givens in our lives. We are surrounded by abundance and comfort, and somehow we still find a way to lament the fact that we haven’t had a vacation in a while.

Over the years, I have often complained about “being alone.” In between boyfriends or during a dry dating spell, as friends around me got married and started families, I felt sorry for myself for what was missing. The loneliness, and sometimes even despair, was so palpable in my life that it blinded me to all the good things. The truth is that I have never been alone. I could literally drown in the sea of love in which I have been fortunate enough to swim my entire life.

Getting cancer was a fantastic reminder of just how many people care about me. I was overwhelmed by the outpouring of love and support from friends, family, co-workers, people I hadn’t seen or been in touch with for years, friends of friends, religious communities and cancer-related organizations just to name a few. I received more than 300 cards, not to mention all the flowers, gifts, meals and visits. Oh, and the people in my life raised nearly $10,000 for ovarian cancer research in my honor.

I am astounded that I could be in the midst of all of that and still feel alone in any way, shape or form. I may live alone in a one-bedroom condo, work from home without colleagues around and file my taxes as a single person, but I am FAR from alone! I am truly and deeply loved by so many people. If you took stock of your life, you would realize that you are too. Sometimes it takes something “bad” such as an illness or injury to help us realize all the “good” in our lives.

Recently, a friend from high school committed suicide. I hadn’t seen him in years or been in touch with him other than becoming Facebook friends. He still lived in our rural hometown in Kentucky and had recently gotten a well-publicized DUI. Speculation runs high that it strongly contributed to his decision to take his own life. Many on Facebook have commented about how many times they considered reaching out, but didn’t. He clearly felt desperate and alone to have made the decision that he did.

There are times in life when we all feel alone and lonely. That feeling is not reserved for those of us who are single or divorced. It is possible to be standing in a river of love and support and feel as if you are dying of thirst. And you don’t have to create an illness or injury in your life to be reminded of the love that is there. Just reach out. It is when we are feeling the most alone and vulnerable that we have the most difficult time opening up and sharing what feels shameful to us.

I am profoundly grateful for the love of my family and so many friends, and I love my life so much! I know that it will be enhanced when I find a partner to share it with, but it’s pretty freaking amazing right now. Take stock of what you have, and I know you’ll feel the same way. And if you haven’t done it in a while, reach out and tell someone in your life how much they mean to you.